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Attention defecit, attention deficet, attention deficit hyperactive disorder
Imagine living in a fast-moving kaleidoscope, where sounds, images, and
thoughts are constantly shifting. Feeling easily bored, yet helpless to
keep your mind on tasks you need to complete. Distracted by unimportant
sights and sounds, your mind drives you from one thought or activity to
the next. Perhaps you are so wrapped up in a collage of thoughts and
images that you don't notice when someone speaks to you.
For many people, this is what it's like to have Attention Deficit
Hyperactivity Disorder, or ADHD. They may be unable to sit still, plan
ahead, finish tasks, or be fully aware of what's going on around them. To
their family, classmates or coworkers, they seem to exist in a whirlwind
of disorganized or frenzied activity. Unexpectedly--on some days and in
some situations--they seem fine, often leading others to think the person
with ADHD can actually control these behaviors. As a result, the disorder
can mar the person's relationships with others in addition to disrupting
their daily life, consuming energy, and diminishing self-esteem.
ADHD, once called hyperkinesis or minimal brain dysfunction, is one of
the most common mental disorders among children. It affects 3 to 5 percent
of all children, perhaps as many as 2 million American children. Two to
three times more boys than girls are affected. On the average, at least
one child in every classroom in the United States needs help for the
disorder. ADHD often continues into adolescence and adulthood, and can
cause a lifetime of frustrated dreams and emotional pain.
But there is help...and hope. In the last decade, scientists have
learned much about the course of the disorder and are now able to identify
and treat children, adolescents, and adults who have it. A variety of
adhd medications, behavior-changing therapies, and educational options are
already available to help people with ADHD focus their attention, build
self-esteem, and function in new ways.
In addition, new avenues of research promise to further improve
diagnosis and treatment. With so many American children diagnosed as
having attention disorder, research on ADHD has become a national
priority. During the 1990s--which the President and Congress have declared
the "Decade of the Brain"--it is possible that scientists will pinpoint
the biological basis of ADHD and learn how to prevent or treat it even
more effectively.
This booklet is provided by the National Institute of Mental Health
(NIMH), the Federal agency that supports research nationwide on the brain,
mental illnesses, and mental health. Scientists supported by NIMH are
dedicated to understanding the workings and interrelationships of the
various regions of the brain, and to developing preventive measures and
new treatments to overcome brain disorders that handicap people in school,
work, and play.
The booklet offers up-to-date information on attention deficit
disorders and the role of NIMH-sponsored research in discovering
underlying causes and effective treatments. It describes treatment
options, strategies for coping, and sources of information and support.
You'll find out what it's like to have ADHD from the stories of Mark,
Lisa, and Henry. You'll see their early frustrations, their steps toward
getting help, and their hopes for the future.
The individuals referred to in this brochure are not real, but their
stories are representative of people who show symptoms of ADHD.
Mark
Mark, age 14, has more energy than most boys his age. But then, he's
always been overly active. Starting at age 3, he was a human tornado,
dashing around and disrupting everything in his path. At home, he darted
from one activity to the next, leaving a trail of toys behind him. At
meals, he upset dishes and chattered nonstop. He was reckless and
impulsive, running into the street with oncoming cars, no matter how many
times his mother explained the danger or scolded him. On the playground,
he seemed no wilder than the other kids. But his tendency to
overreact--like socking playmates simply for bumping into him--had already
gotten him into trouble several times. His parents didn't know what to do.
Mark's doting grandparents reassured them, "Boys will be boys. Don't
worry, he'll grow out of it." But he didn't.
Lisa
At age 17, Lisa still struggles to pay attention and act appropriately.
But this has always been hard for her. She still gets embarrassed thinking
about that night her parents took her to a restaurant to celebrate her
10th birthday. She had gotten so distracted by the waitress' bright red
hair that her father called her name three times before she remembered to
order. Then before she could stop herself, she blurted, "Your hair dye
looks awful!"
In elementary and junior high school, Lisa was quiet and cooperative
but often seemed to be daydreaming. She was smart, yet couldn't improve
her grades no matter how hard she tried. Several times, she failed exams.
Even though she knew most of the answers, she couldn't keep her mind on
the test. Her parents responded to her low grades by taking away
privileges and scolding, "You're just lazy. You could get better grades if
you only tried." One day, after Lisa had failed yet another exam, the
teacher found her sobbing, "What's wrong with me?"
Henry
Although he loves puttering around in his shop, for years Henry has had
dozens of unfinished carpentry projects and ideas for new ones he knew he
would never complete. His garage was piled so high with wood, he and his
wife joked about holding a fire sale.
Every day Henry faced the real frustration of not being able to
concentrate long enough to complete a task. He was fired from his job as
stock clerk because he lost inventory and carelessly filled out forms.
Over the years, afraid that he might be losing his mind, he had seen
psychotherapists and tried several medications, but none ever helped him
concentrate. He saw the same lack of focus in his young son and worried.
The three people you've just met, Mark, Lisa, and Henry, all have a
form of ADHD--Attention Deficit Hyperactivity Disorder. ADHD is not like a
broken arm, or strep throat. Unlike these two disorders, ADHD does not
have clear physical signs that can be seen in an x-ray or a lab test. ADHD
can only be identified by looking for certain characteristic behaviors,
and as with Mark, Lisa, and Henry, these behaviors vary from person to
person. Scientists have not yet identified a single cause behind all the
different patterns of behavior--and they may never find just one. Rather,
someday scientists may find that ADHD is actually an umbrella term for
several slightly different disorders.
At present, ADHD is a diagnosis applied to children and adults who
consistently display certain characteristic behaviors over a period of
time. The most common behaviors fall into three categories: inattention,
hyperactivity, and impulsivity.
Inattention. People who are inattentive have a hard time keeping
their mind on any one thing and may get bored with a task after only a few
minutes. They may give effortless, automatic attention to activities and
things they enjoy. But focusing deliberate, conscious attention to
organizing and completing a task or learning something new is difficult.
For example, Lisa found it agonizing to do homework. Often, she forgot
to plan ahead by writing down the assignment or bringing home the right
books. And when trying to work, every few minutes she found her mind
drifting to something else. As a result, she rarely finished and her work
was full of errors.
Hyperactivity. People who are hyperactive always seem to be in
motion. They can't sit still. Like Mark, they may dash around or talk
incessantly. Sitting still through a lesson can be an impossible task.
Hyperactive children squirm in their seat or roam around the room. Or they
might wiggle their feet, touch everything, or noisily tap their pencil.
Hyperactive teens and adults may feel intensely restless. They may be
fidgety or, like Henry, they may try to do several things at once,
bouncing around from one activity to the next.
Impulsivity. People who are overly impulsive seem unable to curb
their immediate reactions or think before they act. As a result, like
Lisa, they may blurt out inappropriate comments. Or like Mark, they may
run into the street without looking. Their impulsivity may make it hard
for them to wait for things they want or to take their turn in games. They
may grab a toy from another child or hit when they're upset.
Not everyone who is overly hyperactive, inattentive, or impulsive has
an attention disorder. Since most people sometimes blurt out things they
didn't mean to say, bounce from one task to another, or become
disorganized and forgetful, how can specialists tell if the problem is
ADHD?
To assess whether a person has ADHD, specialists consider several
critical questions: Are these behaviors excessive, long-term, and
pervasive? That is, do they occur more often than in other people the same
age? Are they a continuous problem, not just a response to a temporary
situation? Do the behaviors occur in several settings or only in one
specific place like the playground or the office? The person's pattern of
behavior is compared against a set of criteria and characteristics of the
disorder. These criteria appear in a diagnostic reference book called the
DSM (short for the Diagnostic and Statistical Manual of Mental
Disorders).
According to the diagnostic manual, there are three patterns of
behavior that indicate ADHD. People with ADHD may show several signs of
being consistently inattentive. They may have a pattern of being
hyperactive and impulsive. Or they may show all three types of behavior.
Because everyone shows some of these behaviors at times, the DSM
contains very specific guidelines for determining when they indicate ADHD.
The behaviors must appear early in life, before age 7, and continue for at
least 6 months. In children, they must be more frequent or severe than in
others the same age. Above all, the behaviors must create a real handicap
in at least two areas of a person's life, such as school, home, work, or
social settings. So someone whose work or friendships are not impaired by
these behaviors would not be diagnosed with ADHD. Nor would a child who
seems overly active at school but functions well elsewhere.
The fact is, many things can produce these behaviors. Anything from
chronic fear to mild seizures can make a child seem overactive,
quarrelsome, impulsive, or inattentive. For example, a formerly
cooperative child who becomes overactive and easily distracted after a
parent's death is dealing with an emotional problem, not ADHD. A chronic
middle ear infection can also make a child seem distracted and
uncooperative. So can living with family members who are physically
abusive or addicted to drugs or alcohol. Can you imagine a child trying to
focus on a math lesson when his or her safety and well-being are in danger
each day? Such children are showing the effects of other problems, not
ADHD.
In other children, ADHD-like behaviors may be their response to a
defeating classroom situation. Perhaps the child has a learning disability
and is not developmentally ready to learn to read and write at the time
these are taught. Or maybe the work is too hard or too easy, leaving the
child frustrated or bored.
Tyrone and Mimi are two examples of how classroom conditions can elicit
behaviors that look like ADHD. For months, Tyrone shouted answers out in
class, then became disruptive when the teacher ignored him. He certainly
seemed hyperactive and impulsive. Finally, after observing Tyrone in other
situations, his teacher realized he just wanted approval for knowing the
right answer. She began to seek opportunities to call on him and praise
him. Gradually, Tyrone became calmer and more cooperative.
Mimi, a fourth grader, made loud noises during reading group that
constantly disrupted the class. One day the teacher realized that the book
was too hard for Mimi. Mimi's disruptions stopped when she was placed in a
reading group where the books were easier and she could successfully
participate in the lesson.
Like Tyrone and Mimi, some children's attention and class participation
improve when the class structure and lessons are adjusted a bit to meet
their emotional needs, instructional level, or learning style. Although
such children need a little help to get on track at school, they probably
don't have ADHD.
It's also important to realize that during certain stages of
development, the majority of children that age tend to be inattentive,
hyperactive, or impulsive--but do not have ADHD. Preschoolers have lots of
energy and run everywhere they go, but this doesn't mean they are
hyperactive. And many teenagers go through a phase when they are messy,
disorganized, and reject authority. It doesn't mean they will have a
lifelong problem controlling their impulses.
ADHD is a serious diagnosis that may require long-term treatment with
counseling and medication. So it's important that a doctor first look for
and treat any other causes for these behaviors.
What Can Look Like ADHD?
- Underachievement at school due to a learning disability
- Attention lapses caused by petit mal seizures
- A middle ear infection that causes an intermittent hearing problem
- Disruptive or unresponsive behavior due to anxiety or depression
One of the difficulties in diagnosing ADHD is that it is often
accompanied by other problems. For example, many children with ADHD also
have a specific learning disability (LD), which means they have trouble
mastering language or certain academic skills, typically reading and math.
ADHD is not in itself a specific learning disability. But because it can
interfere with concentration and attention, ADHD can make it doubly hard
for a child with LD to do well in school.
A very small proportion of people with ADHD have a rare disorder called
Tourette's syndrome. People with Tourette's have tics and other movements
like eye blinks or facial twitches that they cannot control. Others may
grimace, shrug, sniff, or bark out words. Fortunately, these behaviors can
be controlled with medication. Researchers at NIMH and elsewhere are
involved in evaluating the safety and effectiveness of treatment for
people who have both Tourette's syndrome and ADHD.
More serious, nearly half of all children with ADHD--mostly boys--tend
to have another condition, called oppositional defiant disorder. Like
Mark, who punched playmates for jostling him, these children may overreact
or lash out when they feel bad about themselves. They may be stubborn,
have outbursts of temper, or act belligerent or defiant. Sometimes this
progresses to more serious conduct disorders. Children with this
combination of problems are at risk of getting in trouble at school, and
even with the police. They may take unsafe risks and break laws--they may
steal, set fires, destroy property, and drive recklessly. It's important
that children with these conditions receive help before the behaviors lead
to more serious problems.
At some point, many children with ADHD--mostly younger children and
boys--experience other emotional disorders. About one-fourth feel anxious.
They feel tremendous worry, tension, or uneasiness, even when there's
nothing to fear. Because the feelings are scarier, stronger, and more
frequent than normal fears, they can affect the child's thinking and
behavior. Others experience depression. Depression goes beyond ordinary
sadness--people may feel so "down" that they feel hopeless and
unable to deal with everyday tasks. Depression can disrupt sleep,
appetite, and the ability to think.
Because emotional disorders and attention disorders so often go hand in
hand, every child who has ADHD should be checked for accompanying anxiety
and depression. Anxiety and depression can be treated, and helping
children handle such strong, painful feelings will help them cope with and
overcome the effects of ADHD.
(Graphic Omitted: Diagram showing the overlapping of other disorders
with ADHD.)
Of course, not all children with ADHD have an additional disorder. Nor
do all people with learning disabilities, Tourette's syndrome,
oppositional defiant disorder, conduct disorder, anxiety, or depression
have ADHD. But when they do occur together, the combination of problems
can seriously complicate a person's life. For this reason, it's important
to watch for other disorders in children who have ADHD.
Understandably, one of the first questions parents ask when they learn
their child has an attention disorder is "Why? What went wrong?"
Health professionals stress that since no one knows what causes ADHD,
it doesn't help parents to look backward to search for possible reasons.
There are too many possibilities to pin down the cause with certainty. It
is far more important for the family to move forward in finding ways to
get the right help.
Scientists, however, do need to study causes in an effort to identify
better ways to treat, and perhaps some day, prevent ADHD. They are finding
more and more evidence that ADHD does not stem from home environment, but
from biological causes. When you think about it, there is no clear
relationship between home life and ADHD. Not all children from unstable or
dysfunctional homes have ADHD. And not all children with ADHD come from
dysfunctional families. Knowing this can remove a huge burden of guilt
from parents who might blame themselves for their child's behavior.
Over the last decades, scientists have come up with possible theories
about what causes ADHD. Some of these theories have led to dead ends, some
to exciting new avenues of investigation.
One disappointing theory was that all attention disorders and learning
disabilities were caused by minor head injuries or undetectable damage to
the brain, perhaps from early infection or complications at birth. Based
on this theory, for many years both disorders were called "minimal
brain damage" or "minimal brain dysfunction." Although certain
types of head injury can explain some cases of attention disorder, the
theory was rejected because it could explain only a very small number of
cases. Not everyone with ADHD or LD has a history of head trauma or birth
complications.
Another theory was that refined sugar and food additives make children
hyperactive and inattentive. As a result, parents were encouraged to stop
serving children foods containing artificial flavorings, preservatives,
and sugars. However, this theory, too, came under question. In 1982, the
National Institutes of Health (NIH), the Federal agency responsible for
biomedical research, held a major scientific conference to discuss the
issue. After studying the data, the scientists concluded that the
restricted diet only seemed to help about 5 percent of children with ADHD,
mostly either young children or children with food allergies.
ADHD Is Not Usually Caused by:
- too much TV
- food allergies
- excess sugar
- poor home life
- poor schools
In recent years, as new tools and techniques for studying the brain
have been developed, scientists have been able to test more theories about
what causes ADHD.
Using one such technique, NIMH scientists demonstrated a link between a
person's ability to pay continued attention and the level of activity in
the brain. Adult subjects were asked to learn a list of words. As they
did, scientists used a PET (positron emission tomography) scanner to observe the brain at
work. The researchers measured the level of glucose used by the areas
of the brain that inhibit impulses and control attention. Glucose is the
brain's main source of energy, so measuring how much is used is a good
indicator of the brain's activity level. The investigators found important
differences between people who have ADHD and those who don't. In people
with ADHD, the brain areas that control attention used less glucose,
indicating that they were less active. It appears from this research that
a lower level of activity in some parts of the brain may cause
inattention.
The next step will be to research WHY there is less activity in these
areas of the brain. Scientists at NIMH hope to compare the use of glucose
and the activity level in mild and severe cases of ADHD. They will also
try to discover why some ADHD medications work better than
others, and if the more effective ADHD medications increase activity in certain
parts of the brain.
Researchers are also searching for other differences between those who
have and do not have ADHD. Research on how the brain normally develops in
the fetus offers some clues about what may disrupt the process. Throughout
pregnancy and continuing into the first year of life, the brain is
constantly developing. It begins its growth from a few all-purpose cells
and evolves into a complex organ made of billions of specialized,
interconnected nerve cells. By studying brain development in animals and
humans, scientists are gaining a better understanding of how the brain
works when the nerve cells are connected correctly and incorrectly.
Scientists at NIMH and other research institutions are tracking clues to
determine what might prevent nerve cells from forming the proper
connections. Some of the factors they are studying include drug use during
pregnancy, toxins, and genetics.
Research shows that a mother's use of cigarettes, alcohol, or other
drugs during pregnancy may have damaging effects on the unborn child.
These substances may be dangerous to the fetus's developing brain. It
appears that alcohol and the nicotine in cigarettes may distort developing
nerve cells. For example, heavy alcohol use during pregnancy has been
linked to fetal alcohol syndrome (FAS), a condition that can lead to low
birth weight, intellectual impairment, and certain physical defects. Many
children born with FAS show much the same hyperactivity, inattention, and
impulsivity as children with ADHD.
Drugs such as cocaine--including the smokable form known as crack--seem
to affect the normal development of brain receptors. These brain cell
parts help to transmit incoming signals from our skin, eyes, and ears, and
help control our responses to the environment. Current research suggests
that drug abuse may harm these receptors. Some scientists believe that
such damage may lead to ADHD.
Toxins in the environment may also disrupt brain development or brain
processes, which may lead to ADHD. Lead is one such possible toxin. It is
found in dust, soil, and flaking paint in areas where leaded gasoline and
paint were once used. It is also present in some water pipes. Some animal
studies suggest that children exposed to lead may develop symptoms
associated with ADHD, but only a few cases have actually been found.
Other research shows that attention disorders tend to run in families,
so there are likely to be genetic influences. Children who have ADHD
usually have at least one close relative who also has ADHD. And at least
one-third of all fathers who had ADHD in their youth bear children who
have ADHD. Even more convincing: the majority of identical twins share the
trait. At the National Institutes of Health, researchers are also on the
trail of a gene that may be involved in transmitting ADHD in a small
number of families with a genetic thyroid disorder.
Mark
In third grade, Mark's teacher threw up her hands and said,
"Enough!" In one morning, Mark had jumped out of his seat to
sharpen his pencil six times, each time accidentally charging into other
children's desks and toppling books and papers. He was finally sent to the
principal's office when he began kicking a desk he had overturned. In
sheer frustration, his teacher called a meeting with his parents and the
school psychologist.
But even after they developed a plan for managing Mark's behavior in
class, Mark showed little improvement. Finally, after an extensive
assessment, they found that Mark had an attention deficit that included
hyperactivity. He was put on a medication called Ritalin to control the
hyperactivity during school hours. Although Ritalin failed to help,
another drug called Dexedrine did. With a psychologist's help, his parents
learned to reward desirable behaviors, and to have Mark take "time out"
when he became too disruptive. Soon Mark was able to sit still and focus
on learning.
Lisa
Because Lisa wasn't disruptive in class, it took a long time for
teachers to notice her problem. Lisa was first referred to the school
evaluation team when her teacher realized that she was a bright girl with
failing grades. The team ruled out a learning disability but determined
that she had an attention deficit, ADHD without hyperactivity. The school
psychologist recognized that Lisa was also dealing with depression.
Lisa's teachers and the school psychologist developed a treatment plan
that included participation in a program to increase her attention span
and develop her social skills. They also recommended that Lisa receive
counseling to help her recognize her strengths and overcome her
depression.
Henry
When Henry's son entered kindergarten, it was clear that he was going
to have problems sitting quietly and concentrating. After several
disruptive incidents, the school called and suggested that his son be
evaluated for ADHD. As the boy was assessed, Henry realized that he had
grown up with the same symptoms that specialists were now finding in his
son. Fortunately, the psychologist knew that ADHD can persist in adults.
She suggested that Henry be evaluated by a professional who worked with
adults. For the first time, Henry was correctly diagnosed and given
Ritalin to aid his concentration. What a relief! All the years that he had
been unable to concentrate were due to a disorder that could be
identified, and above all, treated.
Many parents see signs of an attention deficit in toddlers long before
the child enters school. For example, as a 3-year-old, Henry's son already
displayed some signs of hyperactivity. He seemed to lose interest and dart
off even during his favorite TV shows or while playing games. Once, during
a game of "catch," he left the game before the ball even reached him!
Like Henry's son, a child may be unable to focus long enough to play a
simple game. Or, like Mark, the child may be tearing around out of
control. But because children mature at different rates, and are very
different in personality, temperament, and energy level, it's useful to
get an expert's opinion of whether the behaviors are appropriate for the
child's age. Parents can ask their pediatrician, or a child psychologist
or psychiatrist to assess whether their toddler has an attention disorder
or is just immature, has hyperactivity or is just exuberant.
Seeing a child as "a chip off the old block" or "just like his dad" can
blind parents to the need for help. Parents may find it hard to see their
child's behavior as a problem when it so closely resembles their own. In
fact, like Henry, many parents first recognize their own disorder only
when their children are diagnosed.
In many cases, the teacher is the first to recognize that a child is
hyperactive or inattentive and may consult with the school psychologist.
Because teachers work with many children, they come to know how "average"
children behave in learning situations that require attention and self
control. However, teachers sometimes fail to notice the needs of children
like Lisa who are quiet and cooperative.
Types of Professionals Who Make the Diagnosis
School-age and preschool children are often evaluated by a school
psychologist or a team made up of the school psychologist and other
specialists. But if the school doesn't believe the student has a problem,
or if the family wants another opinion, a family may need to see a
specialist in private practice. In such cases, who can the family turn to?
What kinds of specialists do they need?
| Speciality |
| Psychiatrists |
yes |
yes |
yes |
| Psychologists |
yes |
no |
yes |
| Pediatricians or family
physicians |
yes |
yes |
no |
| Neurologists |
yes |
yes |
no |
The family can start by talking with the child's pediatrician or their
family doctor. Some pediatricians may do the assessment themselves, but
more often they refer the family to an appropriate specialist they know
and trust. In addition, state and local agencies that serve families and
children, as well as some of the volunteer organizations listed in the
back of this booklet, can help identify an appropriate specialist.
Knowing the differences in qualifications and services can help the
family choose someone who can best meet their needs. Besides school
psychologists, there are several types of specialists qualified to
diagnose and treat ADHD. Child psychiatrists are doctors who specialize in
diagnosing and treating childhood mental and behavioral disorders. A
psychiatrist can provide therapy and prescribe any needed medications.
Child psychologists are also qualified to diagnose and treat ADHD. They
can provide therapy for the child and help the family develop ways to deal
with the disorder. But psychologists are not medical doctors and must rely
on the child's physician to do medical exams and prescribe medication.
Neurologists, doctors who work with disorders of the brain and nervous
system, can also diagnose ADHD and prescribe medicines. But unlike
psychiatrists and psychologists, neurologists usually do not provide
therapy for the emotional aspects of the disorder. Adults who think they
may have ADHD can also seek a psychologist, psychiatrist, or neurologist.
But at present, not all specialists are skilled in identifying or treating
ADHD in adults.
Within each specialty, individual doctors and mental health
professionals differ in their experience with ADHD. So in selecting a
specialist, it's important to find someone with specific training and
experience in diagnosing and treating the disorder.
Steps In Making a Diagnosis
Whatever the specialist's expertise, his or her first task is to gather
information that will rule out other possible reasons for the child's
behavior. In ruling out other causes, the specialist checks the child's
school and medical records. The specialist tries to sense whether the home
and classroom environments are stressful or chaotic, and how the child's
parents and teachers deal with the child. They may have a doctor look for
such problems as emotional disorders, undetectable (petit mal) seizures,
and poor vision or hearing. Most schools automatically screen for vision
and hearing, so this information is often already on record. A doctor may
also look for allergies or nutrition problems like chronic "caffeine
highs" that might make the child seem overly active.
Next the specialist gathers information on the child's ongoing behavior
in order to compare these behaviors to the symptoms and diagnostic
criteria listed in the DSM (Diagnostic and Statistical Manual of Mental
Disorders). This involves talking with the child and if possible,
observing the child in class and in other settings.
The child's teachers, past and present, are asked to rate their
observations of the child's behavior on standardized evaluation forms to
compare the child's behaviors to those of other children the same age. Of
course, rating scales are subjective--they only capture the teacher's
personal perception of the child. Even so, because teachers get to know so
many children, their judgment of how a child compares to others is usually
accurate.
The specialist interviews the child's teachers, parents, and other
people who know the child well, such as school staff and baby-sitters.
Parents are asked to describe their child's behavior in a variety of
situations. They may also fill out a rating scale to indicate how severe
and frequent the behaviors seem to be.
In some cases, the child may be checked for social adjustment and
mental health. Tests of intelligence and learning achievement may be given
to see if the child has a learning disability and whether the disabilities
are in all or only certain parts of the school curriculum.
In looking at the data, the specialist pays special attention to the
child's behavior during noisy or unstructured situations, like parties, or
during tasks that require sustained attention, like reading, working math
problems, or playing a board game. Behavior during free play or while
getting individual attention is given less importance in the evaluation.
In such situations, most children with ADHD are able to control their
behavior and perform well.
The specialist then pieces together a profile of the child's behavior.
Which ADHD-like behaviors listed in the DSM does the child show? How
often? In what situations? How long has the child been doing them? How old
was the child when the problem started? Are the behaviors seriously
interfering with the child's friendships, school activities, or home life?
Does the child have any other related problems? The answers to these
questions help identify whether the child's hyperactivity, impulsivity,
and inattention are significant and long-standing. If so, the child may be
diagnosed with ADHD.
Adults are diagnosed for ADHD based on their performance at home and at
work. When possible, their parents are asked to rate the person's behavior
as a child. A spouse or roommate can help rate and evaluate current
behaviors. But for the most part, adults are asked to describe their own
experiences. One symptom is a sense of frustration. Since people with ADHD
are often bright and creative, they often report feeling frustrated that
they're not living up to their potential. Many also feel restless and are
easily bored. Some say they need to seek novelty and excitement to help
channel the whirlwind in their minds. Although it may be impossible to
document when these behaviors first started, most adults with ADHD can
give examples of being inattentive, impulsive, overly active, impatient,
and disorganized most of their lives.
Until recent years, adults were not thought to have ADHD, so many
adults with ongoing symptoms have never been diagnosed. People like Henry
go for decades knowing that something is wrong, but not knowing what it
is. Psychotherapy and medication for anxiety, depression, or
manic-depression fail to help much, simply because the ADHD itself is not
being addressed. Yet half the children with ADHD continue to have symptoms
through adulthood. The recent awareness of adult ADHD means that many
people can finally be correctly diagnosed and treated.
A correct diagnosis lets people move forward in their lives. Once the
disorder is known, they can begin to receive whatever combination of
educational, medical, and emotional help they need.
An effective treatment plan helps people with ADHD and their families
at many levels. For adults with ADHD, the treatment plan may include
medication, along with practical and emotional support. For children and
adolescents, it may include providing an appropriate classroom setting,
the right medication, and helping parents to manage their child's
behavior.
Children with ADHD have a variety of needs. Some children are too
hyperactive or inattentive to function in a regular classroom, even with
medication and a behavior management plan. Such children may be placed in
a special education class for all or part of the day. In some schools, the
special education teacher teams with the classroom teacher to meet each
child's unique needs. However, most children are able to stay in the
regular classroom. Whenever possible, educators prefer to not to segregate
children, but to let them learn along with their peers.
Children with ADHD often need some special accommodations to help them
learn. For example, the teacher may seat the child in an area with few
distractions, provide an area where the child can move around and release
excess energy, or establish a clearly posted system of rules and reward
appropriate behavior. Sometimes just keeping a card or a picture on the
desk can serve as a visual reminder to use the right school behavior, like
raising a hand instead of shouting out, or staying in a seat instead of
wandering around the room. Giving a child like Lisa extra time on tests
can make the difference between passing and failing, and gives her a
fairer chance to show what she's learned. Reviewing instructions or
writing assignments on the board, and even listing the books and materials
they will need for the task, may make it possible for disorganized,
inattentive children to complete the work.
Many of the strategies of special education are simply good teaching
methods. Telling students in advance what they will learn, providing
visual aids, and giving written as well as oral instructions are all ways
to help students focus and remember the key parts of the lesson.
Students with ADHD often need to learn techniques for monitoring and
controlling their own attention and behavior. For example, Mark's teacher
taught him several alternatives for when he loses track of what he's
supposed to do. He can look for instructions on the blackboard, raise his
hand, wait to see if he remembers, or quietly ask another child. The
process of finding alternatives to interrupting the teacher has made him
more self-sufficient and cooperative. And because he now interrupts less,
he is beginning to get more praise than reprimands.
In Lisa's class, the teacher frequently stops to ask students to notice
whether they are paying attention to the lesson or if they are thinking
about something else. The students record their answer on a chart. As
students become more consciously aware of their attention, they begin to
see progress and feel good about staying better focused. The process
helped make Lisa aware of when she was drifting off, so she could return
her attention to the lesson faster. As a result, she became more
productive and the quality of her work improved.
Because schools demand that children sit still, wait for a turn, pay
attention, and stick with a task, it's no surprise that many children with
ADHD have problems in class. Their minds are fully capable of learning,
but their hyperactivity and inattention make learning difficult. As a
result, many students with ADHD repeat a grade or drop out of school
early. Fortunately, with the right combination of appropriate educational
practices, medication, and counseling, these outcomes can be avoided.
Right to a Free Public Education
Although parents have the option of taking their child to a private
practitioner for evaluation and educational services, most children with
ADHD qualify for free services within the public schools. Steps are taken
to ensure that each child with ADHD receives an education that meets his
or her unique needs. For example, the special education teacher, working
with parents, the school psychologist, school administrators, and the
classroom teacher, must assess the child's strengths and weaknesses and
design an Individualized Educational Program (IEP). The IEP outlines the
specific skills the child needs to develop as well as appropriate learning
activities that build on the child's strengths. Parents play an important
role in the process. They must be included in meetings and given an
opportunity to review and approve their child's IEP.
Many children with ADHD or other disabilities are able to receive such
special education services under the Individuals with Disabilities
Education Act (IDEA). The Act guarantees appropriate services and a public
education to children with disabilities from ages 3 to 21. Children who do
not qualify for services under IDEA can receive help under an earlier law,
the National Rehabilitation Act, Section 504, which defines disabilities
more broadly. Qualifying for services under the National Rehabilitation
Act is often called "504 eligibility."
Because ADHD is a disability that affects children's ability to learn
and interact with others, it can certainly be a disabling condition. Under
one law or another, most children can receive the services they need.
Some Coping Strategies for Teens and Adults with
ADHD
When necessary, ask the teacher or boss to repeat instructions
rather than guess.
Break large assignments or job tasks into small, simple tasks.
Set a deadline for each task and reward yourself as you complete
each one.
Each day, make a list of what you need to do. Plan the best
order for doing each task. Then make a schedule for doing them. Use
a calendar or daily planner to keep yourself on track.
Work in a quiet area. Do one thing at a time. Give yourself
short breaks.
Write things you need to remember in a notebook with dividers.
Write different kinds of information like assignments, appointments,
and phone numbers in different sections. Keep the book with you all
of the time.
Post notes to yourself to help remind yourself of things you
need to do. Tape notes on the bathroom mirror, on the refrigerator,
in your school locker, or dashboard of your car -- wherever you're
likely to need the reminder.
Store similar things together. For example, keep all your
Nintendo disks in one place, and tape cassettes in another. Keep
canceled checks in one place, and bills in another.
Create a routine. Get yourself ready for school or work at the
same time, in the same way, every day.
Exercise, eat a balanced diet and get enough sleep.
Adopted from: Weinstein, C. "Cognitive Remediation
Strategies." Journal of Psychotherapy Practice and Research.
3(1):44-57, 1994. |
For decades, medications have been used to treat the symptoms of ADHD.
Three ADHD medications in the class of drugs known as stimulants seem to be the
most effective in both children and adults. These are methylphenidate
(Ritalin), dextroamphetamine (Dexedrine or Dextrostat), and pemoline
(Cylert). For many people, these medicines dramatically reduce their
hyperactivity and improve their ability to focus, work, and learn. The
medications may also improve physical coordination, such as handwriting
and ability in sports. Recent research by NIMH suggests that these
medicines may also help children with an accompanying conduct disorder to
control their impulsive, destructive behaviors.
Ritalin helped Henry focus on and complete tasks for the first time.
Dexedrine helped Mark to sit quietly, focus his attention, and participate
in class so he could learn. He also became less impulsive and aggressive.
Along with these changes in his behavior, Mark began to make and keep
friends.
Unfortunately, when people see such immediate improvement, they often
think medication is all that's needed. But these medicines don't cure the
disorder, they only temporarily control the symptoms. Although the drugs
help people pay better attention and complete their work, they can't
increase knowledge or improve academic skills. The drugs alone can't help
people feel better about themselves or cope with problems. These require
other kinds of treatment and support.
For lasting improvement, numerous clinicians recommend that ADHD medications
should be used along with treatments that aid in these other areas. There
are no quick cures. Many experts believe that the most significant,
long-lasting gains appear when medication is combined with behavioral
therapy, emotional counseling, and practical support. Some studies suggest
that the combination of medicine and therapy may be more effective than
drugs alone. NIMH is conducting a large study to check this.
Use of Stimulant Drugs
Stimulant drugs, such as Ritalin, Cylert, and Dexedrine, when used with
medical supervision, are usually considered quite safe. Although they can
be addictive to teenagers and adults if misused, these medications are not
addictive in children. They seldom make children "high" or jittery.
Nor do they sedate the child. Rather, the stimulants help children control
their hyperactivity, inattention, and other behaviors.
Different doctors use the medications in slightly different ways.
Cylert is available in one form, which naturally lasts 5 to 10 hours.
Ritalin and Dexedrine come in short-term tablets that last about 3 hours,
as well as longer-term preparations that last through the school day. The
short-term dose is often more practical for children who need medication
only during the school day or for special situations, like attending
church or a prom, or studying for an important exam. The sustained-release
dosage frees the child from the inconvenience or embarrassment of going to
the office or school nurse every day for a pill. The doctor can help
decide which preparation to use, and whether a child needs to take the
medicine during school hours only or in the evenings and on weekends, too.
Nine out of 10 children improve on one of the three stimulant drugs. So
if one doesn't help, the others should be tried. Usually a medication
should be tried for a week to see if it helps. If necessary, however, the
doctor will also try adjusting the dosage before switching to a different
drug.
Other types of medication may be used if stimulants don't work or if
the ADHD occurs with another disorder. Antidepressants and other
medications may be used to help control accompanying depression or
anxiety. In some cases, antihistamines may be tried. Clonidine, a drug
normally used to treat hypertension, may be helpful in people with both
ADHD and Tourette's syndrome. Although stimulants tend to be more
effective, clonidine may be tried when stimulants don't work or can't be
used. Clonidine can be administered either by pill or by skin patch and
has different side effects than stimulants. The doctor works closely with
each patient to find the most appropriate medication.
Sometimes, a child's ADHD symptoms seem to worsen, leading parents to
wonder why. They can be assured that a drug that helps rarely stops
working. However, they should work with the doctor to check that the child
is getting the right dosage. Parents should also make sure that the child
is actually getting the prescribed daily dosage at home or at school--it's
easy to forget. They also need to know that new or exaggerated behaviors
may also crop up when a child is under stress. The challenges that all
children face, like changing schools or entering puberty, may be even more
stressful for a child with ADHD.
Some doctors recommend that children be taken off a medication now and
then to see if the child still needs it. They recommend temporarily
stopping the drug during school breaks and summer vacations, when focused
attention and calm behavior are usually not as crucial. These "drug
holidays" work well if the child can still participate at camp or other
activities without medication.
Children on ADHD medications should have regular checkups. Parents should
also talk regularly with the child's teachers and doctor about how the
child is doing. This is especially important when a medication is first
started, re-started, or when the dosage is changed.
The Medication Debate
As useful as these drugs are, Ritalin and the other stimulants have
sparked a great deal of controversy. Most doctors feel the potential side
effects should be carefully weighed against the benefits before
prescribing the drugs. While on these medications, some children may lose
weight, have less appetite, and temporarily grow more slowly. Others may
have problems falling asleep. Some doctors believe that stimulants may
also make the symptoms of Tourette's syndrome worse, although recent
research suggests this may not be true. Other doctors say if they
carefully watch the child's height, weight, and overall development, the
benefits of medication far outweigh the potential side effects. Side
effects that do occur can often be handled by reducing the dosage.
It's natural for parents to be concerned about whether taking a
medicine is in their child's best interests. Parents need to be clear
about the benefits and potential risks of using these drugs. The child's
pediatrician or psychiatrist can provide advice and answer questions.
Another debate is whether Ritalin and other stimulant drugs are
prescribed unnecessarily for too many children. Remember that many things,
including anxiety, depression, allergies, seizures, or problems with the
home or school environment can make children seem overactive, impulsive,
or inattentive. Critics argue that many children who do not have a true
attention disorder are medicated as a way to control their disruptive
behaviors.
Medication and Self-Esteem
When a child's schoolwork and behavior improve soon after starting
medication, the child, parents, and teachers tend to applaud the drug for
causing the sudden change. But these changes are actually the child's own
strengths and natural abilities coming out from behind a cloud. Giving
credit to the medication can make the child feel incompetent. The
medication only makes these changes possible. The child must supply the
effort and ability. To help children feel good about themselves, parents
and teachers need to praise the child, not the drug.
It's also important to help children and teenagers feel comfortable
about a medication they must take every day. They may feel that because
they take medicine they are different from their classmates or that
there's something seriously wrong with them. CH.A.D.D. (which stands for
Children and Adults with Attention Deficit Disorders), a leading
organization for people with attention disorders, suggests several ways
that parents and teachers can help children view the medication in a
positive way:
- Compare the pills to eyeglasses, braces, and allergy medications
used by other children in their class. Explain that their medicine is
simply a tool to help them focus and pay attention.
- Point out that they're lucky their problem can be helped. Encourage
them to identify ways the medicine makes it easier to do things that are
important to them, like make friends, succeed at school, and
play.
Myths About Stimulant Medication
-
Myth:Stimulants can lead to drug addiction later in
life.
-
Fact:Stimulants help many children focus and be more
successful at school, home, and play. Avoiding negative experiences now
may actually help prevent addictions and other emotional problems later.
-
Myth:Responding well to a stimulant drug proves a person
has ADHD.
-
Fact:Stimulants allow many people to focus and pay
better attention, whether or not they have ADHD. The improvement is just
more noticeable in people with ADHD.
-
Myth:Medication should be stopped when the child reaches
adolescence.
-
Fact:Not so! About 80 percent of those who needed
medication as children still need it as teenagers. Fifty percent need
medication as adults.
Treatments To Help People With ADHD and Their Families Learn To
Cope
Life can be hard for children with ADHD. They're the ones who are so
often in trouble at school, can't finish a game, and lose friends. They
may spend agonizing hours each night struggling to keep their mind on
their homework, then forget to bring it to school.
It's not easy coping with these frustrations day after day. Some
children release their frustration by acting contrary, starting fights, or
destroying property. Some turn the frustration into body ailments, like
the child who gets a stomachache each day before school. Others hold their
needs and fears inside, so that no one sees how badly they feel.
It's also difficult having a sister, brother, or classmate who gets
angry, grabs your toys, and loses your things. Children who live with or
share a classroom with a child who has ADHD get frustrated, too. They may
feel neglected as their parents or teachers try to cope with the
hyperactive child. They may resent their brother or sister never finishing
chores, or being pushed around by a classmate. They want to love their
sibling and get along with their classmate, but sometimes it's so hard!
It's especially hard being the parent of a child who is full of
uncontrolled activity, leaves messes, throws tantrums, and doesn't listen
or follow instructions. Parents often feel powerless and at a loss. The
usual methods of discipline, like reasoning and scolding, don't work with
this child, because the child doesn't really choose to act in these ways.
It's just that their self-control comes and goes. Out of sheer
frustration, parents sometimes find themselves spanking, ridiculing, or
screaming at the child, even though they know it's not appropriate. Their
response leaves everyone more upset than before. Then they blame
themselves for not being better parents. Once children are diagnosed and
receiving treatment, some of the emotional upset within the family may
fade.
Medication can help to control some of the behavior problems that may
have lead to family turmoil. But more often, there are other aspects of
the problem that medication can't touch. Even though ADHD primarily
affects a person's behavior, having the disorder has broad emotional
repercussions. For some children, being scolded is the only attention they
ever get. They have few experiences that build their sense of worth and
competence. If they're hyperactive, they're often told they're bad and
punished for being disruptive. If they are too disorganized and unfocused
to complete tasks, others may call them lazy. If they impulsively grab
toys, butt in, or shove classmates, they may lose friends. And if they
have a related conduct disorder, they may get in trouble at school or with
the law. Facing the daily frustrations that can come with having ADHD can
make people fear that they are strange, abnormal, or stupid.
Often, the cycle of frustration, blame, and anger has gone on so long
that it will take some time to undo. Both parents and their children may
need special help to develop techniques for managing the patterns of
behavior. In such cases, mental health professionals can counsel the child
and the family, helping them to develop new skills, attitudes, and ways of
relating to each other. In individual counseling, the therapist helps
children or adults with ADHD learn to feel better about themselves. They
learn to recognize that having a disability does not reflect who they are
as a person. The therapist can also help people with ADHD identify and
build on their strengths, cope with daily problems, and control their
attention and aggression. In group counseling, people learn that they are
not alone in their frustration and that others want to help. Sometimes
only the individual with ADHD needs counseling support. But in many cases,
because the problem affects the family as well as the person with ADHD,
the entire family may need help. The therapist assists the family in
finding better ways to handle the disruptive behaviors and promote change.
If the child is young, most of the therapist's work is with the parents,
teaching them techniques for coping with and improving their child's
behavior.
Several intervention approaches are available and different therapists
tend to prefer one approach or another. Knowing something about the
various types of interventions makes it easier for families to choose a
therapist that is right for their needs.
Psychotherapy works to help people with ADHD to like and
accept themselves despite their disorder. In psychotherapy, patients talk
with the therapist about upsetting thoughts and feelings, explore
self-defeating patterns of behavior, and learn alternative ways to handle
their emotions. As they talk, the therapist tries to help them understand
how they can change. However, people dealing with ADHD usually want to
gain control of their symptomatic behaviors more directly. If so, more
direct kinds of intervention are needed.
Cognitive-behavioral therapy helps people work on
immediate issues. Rather than helping people understand their feelings and
actions, it supports them directly in changing their behavior. The support
might be practical assistance, like helping Henry learn to think through
tasks and organize his work. Or the support might be to encourage new
behaviors by giving praise or rewards each time the person acts in the
desired way. A cognitive-behavioral therapist might use such techniques to
help a belligerent child like Mark learn to control his fighting, or an
impulsive teenager like Lisa to think before she speaks.
Social skills training can also help children learn new
behaviors. In social skills training, the therapist discusses and models
appropriate behaviors like waiting for a turn, sharing toys, asking for
help, or responding to teasing, then gives children a chance to practice.
For example, a child might learn to "read" other people's facial
expression and tone of voice, in order to respond more appropriately.
Social skills training helped Lisa learn to join in group activities, make
appropriate comments, and ask for help. A child like Mark might learn to
see how his behavior affects others and develop new ways to respond when
angry or pushed.
Support groups connect people who have common concerns.
Many adults with ADHD and parents of children with ADHD find it useful to
join a local or national support group. Many groups deal with issues of
children's disorders, and even ADHD specifically. The national
associations listed at the back of this booklet can explain how to contact
a local chapter. Members of support groups share frustrations and
successes, referrals to qualified specialists, and information about what
works, as well as their hopes for themselves and their children. There is
strength in numbers--and sharing experiences with others who have similar
problems helps people know that they aren't alone.
Parenting skills training, offered by therapists or in
special classes, gives parents tools and techniques for managing their
child's behavior. One such technique is the use of "time out" when the
child becomes too unruly or out of control. During time outs, the child is
removed from the agitating situation and sits alone quietly for a short
time to calm down. Parents may also be taught to give the child "quality
time" each day, in which they share a pleasurable or relaxed activity.
During this time together, the parent looks for opportunities to notice
and point out what the child does well, and praise his or her strengths
and abilities.
An effective way to modify a child's behavior is through a system of
rewards and penalties. The parents (or teacher) identify a few desirable
behaviors that they want to encourage in the child--such as asking for a
toy instead of grabbing it, or completing a simple task. The child is told
exactly what is expected in order to earn the reward. The child receives
the reward when he performs the desired behavior and a mild penalty when
he doesn't. A reward can be small, perhaps a token that can be exchanged
for special privileges, but it should be something the child wants and is
eager to earn. The penalty might be removal of a token or a brief "time
out." The goal, over time, is to help children learn to control their own
behavior and to choose the more desired behavior. The technique works well
with all children, although children with ADHD may need more frequent
rewards.
In addition, parents may learn to structure situations in ways that
will allow their child to succeed. This may include allowing only one or
two playmates at a time, so that their child doesn't get overstimulated.
Or if their child has trouble completing tasks, they may learn to help the
child divide a large task into small steps, then praise the child as each
step is completed.
Parents may also learn to use stress management methods, such as
meditation, relaxation techniques, and exercise to increase their own
tolerance for frustration, so that they can respond more calmly to their
child's behavior.
Controversial Treatments
Understandably, parents who are eager to help their children want to
explore every possible option. Many newly touted treatments sound
reasonable. Many even come with glowing reports. A few are pure quackery.
Some are even developed by reputable doctors or specialists--but when
tested scientifically, cannot be proven to help.
Here are a few types of treatment that have not been scientifically
shown to be effective in treating the majority of children or adults with
ADHD:
- biofeedback
- restricted diets
- allergy treatments
- medicines to correct problems in the inner ear
- megavitamins
- chiropractic adjustment and bone re-alignment
- treatment for yeast infection
- eye training
- special colored glasses
A few success stories can't substitute for scientific evidence. Until
sound, scientific testing shows a treatment to be effective, families risk
spending time, money, and hope on fads and false promises.
Mark
Today, at age 14, Mark is doing much better in school. He channels his
energy into sports and is a star player on the intramural football team.
Although he still gets into fights now and then, a child psychologist is
helping him learn to control his tantrums and frustration, and he is able
to make and keep friends. His grandparents point to him with pride and
say, "We knew he'd turn out just fine!"
Lisa
Lisa is about to graduate from high school. She's better able to focus
her attention and concentrate on her work, so that now her grades are
quite good. Overcoming her depression and learning to like herself have
also given her more confidence to develop friendships and try new things.
Lately, she has been working with the school guidance counselor to
identify the right kind of job to look for after graduation. She hopes to
find a career that will bypass her attention problems and make the best
use of her assets and skills. She is more alert and focused and is
considering trying college in a year or two. Her counselor reminds her
that she's certainly smart enough.
Henry
These days, Henry is successful and happy in his job as a shoe
salesman. The work allows him to move around throughout the day, and the
appearance of new customers provides the variety he needs to help him stay
focused. He recently completed a course in time management, and now keeps
lists, organizes his work, and schedules his day. Now that he has
harnessed his energy, his ability to think about several things at once
allows him to be creative and productive.
He is proud that he and his wife have developed important parenting
skills for working with their son, so that he, too, is doing better at
home and at school. Henry is also pleased with his new ability to follow
through on projects. In fact, he just finished making his son a beautiful
wooden toy chest for his birthday.
Even though most people don't outgrow ADHD, people do learn to adapt
and live fulfilling lives. Mark, Lisa, and Henry are making good lives for
themselves--not by being cured, but by developing their personal
strengths. With effective combinations of medicine, new skills, and
emotional support, people with ADHD can develop ways to control their
attention and minimize their disruptive behaviors. Like Henry, they may
find that by structuring tasks and controlling their environment, they can
achieve personal goals. Like Mark, they may learn to channel their excess
energy into sports and other high energy activities. And like Lisa, they
can identify career options that build on their strengths and abilities.
As they grow up, with appropriate help from parents and clinicians,
children with ADHD become better able to suppress their hyperactivity and
to channel it into more socially acceptable behaviors, like physical
exercise or fidgeting. And although we know that half of all children with
ADHD will still show signs of the problem into adulthood, we also know
that the medications and therapy that help children also work for adults.
All people with ADHD have natural talents and abilities that they can
draw on to create fine lives and careers for themselves. In fact, many
people with ADHD even feel that their patterns of behavior give them
unique, often unrecognized, advantages. People with ADHD tend to be
outgoing and ready for action. Because of their drive for excitement and
stimulation, many become successful in business, sports, construction, and
public speaking. Because of their ability to think about many things at
once, many have won acclaim as artists and inventors. Many choose work
that gives them freedom to move around and release excess energy. But some
find ways to be effective in quieter, more sedentary careers. Sally, a
computer programmer, found that she thinks best when she wears headphones
to reduce distracting noises. Like Henry, some people strive to increase
their organizational skills. Others who own their own business find it
useful to hire support staff to provide day-to-day management.
Although no immediate cure is in sight, a new understanding of ADHD may
be just over the horizon. Using a variety of research tools and methods,
scientists are beginning to uncover new information on the role of the
brain in ADHD and effective treatments for the disorder Such research will
ultimately result in improving the personal fulfillment and productivity
of people with ADHD.
For example, the use of new techniques like brain imaging to observe
how the brain actually works is already providing new insights into the
causes of ADHD. Other research is seeking to identify conditions of
pregnancy and early childhood that may cause or contribute to these
differences in the brain. As the body of knowledge grows, scientists may
someday learn how to prevent these differences or at least how to treat
them.
NIMH and the U.S. Department of Education are cosponsoring a large
national study--the first of its kind--to see which combinations of ADHD
treatment work best for different types of children. During this 5-year
study, scientists at research clinics across the country will work
together in gathering data to answer such questions as: Is combining
stimulant medication with behavior modification more effective than either
alone? Do boys and girls respond differently to treatment? How do family
stresses, income, and environment affect the severity of ADHD and
long-term outcomes? How does needing medicine affect children's sense of
competence, self-control, and self-esteem? As a result of such research,
doctors and mental health specialists may someday know who benefits most
from different types of treatment and be able to intervene more
effectively.
NIMH grantees are also trying to determine if there are different
varieties of attention deficit. With further study, researchers may find
that ADHD actually covers a number of different disorders, each with its
own cluster of symptoms and treatment requirements. For example,
scientists are exploring whether there are any critical differences
between children with ADHD who also have anxiety, depression, or conduct
disorders and those who do not. Other researchers are studying slight
physical differences that might distinguish one type of ADHD from another.
If clusters of differences can be found, scientists can begin to
distinguish the treatment each type needs.
Other NIMH-sponsored research is examining the long-term outcome of
ADHD. How do children with ADHD turn out, compared to brothers and sisters
without the disorder? As adults, how do they handle their own children?
Still other studies seek to better understand ADHD in adults. Such studies
give insights into what types of treatment or services make a difference
in helping an ADHD child grow into a caring parent and a well-functioning
adult.
Animal studies are also adding to our knowledge of ADHD in humans.
Animal subjects make it possible to study some of the possible causes of
ADHD in ways that can't be studied in people. In addition, animal research
allows the safety and effectiveness of experimental new drugs to be tested
long before they can be given to humans. One NIH-sponsored team of
scientists is studying dogs to learn how new stimulant drugs that are
similar to Ritalin act on the brain.
Piece by piece, through studies of humans and animals, scientists are
beginning to understand the biological nature of attention disorders. New
research is allowing us to better understand the inner workings of the
brain as we continue to develop new ADHD medications and assess new forms of
treatment.
As we learn more about what actually happens inside the brain, we
approach a future where we can prevent certain brain and mental disorders,
make valid diagnoses, and treat each effectively. This is the hope,
mission, and vision of the National Institute of Mental Health.
Keeping on Top of Your Condition
Keeping in tune with your disease or condition not only makes treatment less intimidating but also increases its chance of success, and has been shown to lower a patients risk of complications. As well, as an informed patient, you are better able to discuss your condition and treatment options with your physician.
A new service available to patients provides a convenient means of staying informed, and ensures that the information is both reliable and accurate. If you wish to find out more about HealthNewsflash's innovative service, take the tour.
Several publications, organizations, and support groups exist to help
individuals, teachers, and families to understand and cope with attention
disorders. The following resources provide a good starting point for
gaining insight, practical solutions, and support. Other resources are
outpatient clinics of children's hospitals, university medical centers,
and community mental health centers. Additional printed information can be
found at libraries and book stores.
-
Books for Children and Teens:
Galvin, M. Otto Learns about his Medication. New York:
Magination Press, 1988. (for young children)
Gehret, J. Learning Disabilities and the Don't Give Up Kid.
Fairport, New York: Verbal Images Press, 1990. (for classmates and
children with learning disabilities and attention difficulties, ages
7-12)
Gordon, M. Jumpin' Johnny, Get Back to Work! A Child's Guide to
ADHD/Hyperactivity. DeWitt, New York: GSI Publications, 1991. (for
ages 7-12)
Meyer, D.; Vadasy, P.; and Fewell, R. Living with a Brother or
Sister with Special Needs: A Book for Sibs. Seattle: University of
Washington Press, 1985.
Moss, D. Shelly the Hyperactive Turtle. Rockville, MD:
Woodbine House, 1989. (for young children)
Nadeau, K., and Dixon, E. Learning to Slow Down and Pay
Attention. Annandale, VA: Chesapeake Psychological Publications,
1993.
Parker, R. Making the Grade: An Adolescent's Struggle with
ADD. Plantation, FL: Impact Publications, 1992.
Quinn, P., and Stern, J. Putting on the Brakes: Young People's
Guide to Understanding Attention Deficit Hyperactivity Disorder. New
York: Magination Press, 1991. (for ages 8-12)
Thompson, M. My Brother Matthew. Rockville, MD: Woodbine
House, 1992.
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Books for Adults With Attention Disorders:
Adelman, P., and Wren, C. Learning Disabilities, Graduate School,
and Careers: The Student's Perspective. Lake Forest, IL: Learning
Opportunities Program, Barat College, 1990.
Hallowell, E., and Ratey, J. Driven to Distraction. New York:
Pantheon Books, 1994.
Hartmann, T. Attention Deficit Disorder: A New Perception.
Lancaster, PA: Underwood-Miller, 1993.
Kelly, K., and Ramundo, P. You Mean I'm Not Lazy, Stupid, or
Crazy?! Cincinnati, OH: Tyrell and Jeremy Press, 1993.
Weiss, G., and Hechtman, L. (eds). Hyperactive Children Grown
Up. 2d ed. New York: Guilford Press, 1992.
Weiss, L. Attention Deficit Disorder in Adults. Dallas, TX:
Taylor Pub. Co., 1992.
Wender, P. The Hyperactive Child, Adolescence, and Adult:
Attention Deficit Disorder Through the Lifespan. New York: Oxford
University Press, 1987.
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Books for Parents:
Anderson, W.; Chitwood, S.; and Hayden, D. Negotiating the Special
Education Maze: A Guide for Parents and Teachers. 2d ed. Rockville,
MD: Woodbine House, 1990.
Bain, L. A Parent's Guide to Attention Deficit Disorders. New
York: Dell Publishing, 1991.
Barkley, R. Defiant Children. New York: Guilford Press, 1987.
Child Psychopharmacy Center, University of Wisconsin. Stimulants
and Hyperactive Children. Madison: 1990. (Order by calling (608)
263-6171.)
Copeland, E., and Love, V. Attention, Please!: A Comprehensive
Guide for Successfully Parenting Children with Attention Disorders and
Hyperactivity. Atlanta, GA: SPI Press, 1991.
Fowler, M. Maybe You Know My Kid: A Parent's Guide to Identifying,
Understanding, and Helping your Child with ADHD. New York: Birch
Lane Press, 1990.
Goldstein, S., and Goldstein, M. Hyperactivity: Why Won't My Child
Pay Attention? New York: J. Wiley, 1992.
Greenberg, G.; Horn, S.; and Wade F. Attention Deficit
Hyperactivity Disorder: Questions & Answers for Parents.
Champaign, IL: Research Press, 1991.
Ingersoll, B., and Goldstein, S. Attention Deficit Disorder and
Learning Disabilities: Realities, Myths, and Controversial
Treatments. New York: Doubleday, 1993.
Kennedy, P.; Terdal, L.; and Fusetti, L. The Hyperactive Child
Book. New York: St. Martrin's Press, 1993.
Moss, R., and Dunlap, H. Why Johnny Can't Concentrate: Coping with
Attention Deficit Problems. New York: Bantam Books, 1990.
Silver, L. Dr. Silver's Advice to Parents on Attention-Deficit
Hyperactivity Disorder. Washington, DC: American Psychiatric Press,
1993.
Vail, P. Smart Kids with School Problems. New York: EP Dutton,
1987.
Wilson, N. Optimizing Special Education: How Parents Can Make a
Difference. New York: Insight Books, 1992.
Windell, J. Discipline: A Sourcebook of 50 Failsafe Techniques for
Parents. New York: Collier Books, 1991.
Other Resources:
For individuals with a computer and modem, there are on-line bulletin
boards where parents, adults with ADHD, and medical professionals share
experiences, offer emotional support, and ask and respond to questions.
Two such on-line services include CompuServe [(800) 848-8990] and
America Online [(800) 827-6364]. You may also wish to check with other
national and local on-line communications companies to see if they offer
similar services.
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Resources for Teachers and Specialists:
Barkley, R. Attention Deficit Hyperactivity Disorder (four
40-minute videocassettes in VHS format). New York: Guilford
Publications, 1990.
Copeland, E., and Love, V. Attention Without Tension: A Teacher's
Handbook on Attention Disorders. Atlanta, GA: 3 C's of Childhood,
1992.
Harris, K., and Graham, S. Helping Young Writers Master the
Craft. Cambridge, MA: Brookline Books, 1992.
Johnson, D. I Can't Sit Still-Educating and Affirming Inattentive
and Hyperactive Children: Suggestions for Parents, Teachers, and Other
Care Providers of Children to Age 10. Santa Cruz, CA: ETR
Associates, 1992.
Parker, H. The ADD Hyperactivity Handbook for Schools.
Plantation, FL: Impact Publications, 1992.
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